The Isolation of Grief

The Isolation of Grief

Now, I’ve never been a stranger to isolation. The kind that comes from feeling like you just don’t fit into your surroundings. But I’ve never felt as isolated as I did after the death of my daughter.

As a child, I was a shy, introverted person who felt different than the people around me. At the time, I never really knew why. I didn’t like the feeling of isolation, but I didn’t understand what caused it. So it just became a fact of life.

My shyness lessened over time, but remains a fundamental part of my personality. I’ve learned how to handle and enjoy various social situations. But I still prefer interacting with small groups or one-on-one conversations.

After my daughter died, my sense of isolation grew exponentially as a result of grief.

In the immediate aftermath of her sudden death, our house was filled with family and friends. They showed support by helping us do what had to be done. Things like planning the memorial and visiting the cemetery to secure a plot. Some helped work with our insurance company or write an obituary. Family and friends prepared meals, made sure we were left alone when we needed our space, gave us hugs, and shed tears with us.

The phone rang often. I found myself doing most of the talking when the other end of the phone was uncomfortably silent. People struggled to find the right words to say. Even in my numbness, I was able to understand the dilemma of “I’m sorry” doesn’t seem to be enough when someone has just lost a four-year-old little girl.

A few days after the memorial service, everyone went home. Less sympathy cards arrived in the mail until there were none. The phone stopped ringing. Our daughter’s preschool arranged a weekly meal donation and then my work did the same. The meals were a huge help, but eventually those stopped coming too.

We were left alone to figure out how to pick up the pieces of our shattered hearts and shattered lives. To find help, we went to counseling and support groups. But we were forced to accept the fact that life was going to keep moving forward without our precious girl in it. It was devastating.

That devastation led me to a self-imposed isolation from a world I could no longer stand to be a part of.

I didn’t want to talk to people who couldn’t understand my pain because I didn’t have the energy to explain myself. The sound of laughter or gossip produced outright anger in me. Everyday acts of going to work, chores, grocery shopping, or even something as simple as showering were agonizingly painful and almost impossible.

I wanted nothing to do with any of it. I found myself not answering the phone and not returning messages. When friends who weren’t sure how to help me invited me over, I politely turned them down.

I managed to make sure that I fed my surviving kids and took them to school and practices. But I was no longer the mom they were used to. They stopped wanting to talk to me about how they felt because they thought it would make me even sadder. My kids were frightened that not only did they lose their sister, there was a potential that they were losing the mom they thought they knew.

Over that first year after her death, the suffocating pain began to lessen. Though not by as much as I would have hoped. Everyday tasks didn’t seem so impossible anymore. I began to adjust to the “new normal” any grieving person must accept.

After a while, the isolation of grief began to change.

While I started answering the phone and accepting some of those invitations, I felt isolated in a different sense. I continued to think of my daughter and experience the pain constantly, but very few people talked about my grief or even mentioned her name any more. Even surrounded by friends, I felt completely alone.

Support groups and counseling helped. So did reaching out to other parents who had lost children. At that time, I preferred their company over others. I found myself part of the secret society of grieving parents who mostly keep their grief to themselves. They only tend to share their grief with those who are faced with the same loss and pain. I found that sharing my feelings with these people helped me immensely.

With the passage of time, I’m learning how to balance becoming fully reinvested in life while respecting my continuing needs for grief support.

I still look forward to support groups and talking with other bereaved people. But I also appreciate that when I allow myself to enjoy and appreciate everyday life, joy will come even without my daughter being physically here.

I still long for her to be at my side and to experience the wonder of watching her grow. But I know that she will always be with me in spirit. She is forever in my heart, my memories, and my thoughts. And these days, I don’t mind sharing that with anyone who cares to get to know me.

Fancy Girl

Fancy Girl

We try to go to parades throughout the year, and many of them result in a collection of colorful mardi gras beads. Our daughter, Margareta, loved to wear them, as it brought out the “girly” side of her dual tomboy/girly girl personality.

Not satisfied with just wearing them around her neck, she would take her shirt off and put them across her back and around her arms, as if she had put on the straps of a backpack. When she started wearing the beads, we would remark how fancy she looked. She liked hearing it much, she started calling them “fancy beads”.

She would insist on collecting any strand of fancy beads she found in the house and hoarding them in her room. She loved them so much, she was buried with some of those beads so she could stay looking fancy forever. I keep some hanging around my rear-view mirror in memory of my fancy girl in her fancy beads.

Submitted by Maria Kubitz in loving memory of her daughter, Margareta Kubitz.

The Fear of Forgetting a Loved One

The Fear of Forgetting a Loved One

My daughter died just after turning four years old. One of my biggest fears has been that she will be forgotten. But what does that fear actually mean? What exactly am I really scared of? And how do I combat the fear?

The idea that she will be forgotten is actually two separate fears.

The first fear is that friends and even family will stop thinking of her and, in essence, “forget her”.

In reality, this is the natural course of life. I have beloved relatives and dear friends who have passed and yet I rarely think of them. Does it mean they didn’t exist or have any less impact on my life? No. Nor does it mean I love them any less. What it does represent is that life goes on and current matters occupy our minds.

When family and friends stopped talking about my daughter it felt like they no longer thought of her. And though it’s been years since she died, my daily thoughts are still filled with memories and longing for her. In the first few years of my grief, this disconnect made me feel even more isolated from the “normal” world.

Our society tends to not want to talk about grief or the lingering pain of loss after the funeral is over. So I and many other grieving people go about our business and lead two lives. We have the “normal” life that goes about trying to live and act the way we did before they died. Then we have our “private” life where we still struggle to figure out how to work through the pain of grief. We must learn how to once again embrace the love, joy, and adventures that surround us.

The second part of my fear has to do with me and my memory.

With every passing day, and with all the new information coming in, memories of my daughter tend to get crowded out and forgotten.

All those everyday moments that I took for granted at the time have already faded into the abyss of memories lost to time. With my daughter no longer physically here, memories of her have become precious commodities. Those few memories of specific moments captured in time allow me to momentarily remember not just who she was, but remember life before the pain of her death forever changed me and my world.

It makes me sad that her older brothers say that they have very few specific memories of her. It makes me sadder that her baby brother never had the chance to meet her. He will have to rely on our stories and descriptions of her if he ever wants to get to know her.

To combat this fear, I have tried to write down as many memories as I can – even if they are mundane.

I keep them in a journal, and some I post to www.aliveinmemory.org to share them with others. This way I can refer back to them and share them with whoever is interested in reading them. Her brothers can read these memories and share them with their eventual families.

But I wonder, is my fear of forgetting my memories really necessary? Does it make me a bad mother that I can’t remember more moments I shared with her? Of course not. Does it mean my love for her will fade with the memories? Absolutely not.

I wish I could remember more specific memories of the time we shared with her. But I will try to be content knowing that I will never forget how much I love my daughter or how much she means to me. I will never forget her personality quirks, her vivid imagination, and endless creativity. And I will never forget how her life – and her death – have helped me grow tremendously in my understanding of this life and how best to live it.

Navigating the Ebb and Flow of Grief

Navigating the Ebb and Flow of Grief

Years have passed since my daughter’s death, and I thought it would be easier than this.

The intense grief during those early days and months made it feel like I couldn’t survive this loss. Yet I saw people in support groups who’d lost loved ones years before who seemed okay. They looked almost “normal” again and told me it wouldn’t always be like this. “You learn to live with the pain, and it will lessen over time.”

They said I’d  eventually find happiness again, and I’d create a “new normal.”

And they were right.

It’s been years of hard work to soften my grief. Counselors and support groups were a huge help for me. I looked for ways to express my pain so it wouldn’t consume me. I volunteered my time with The Compassionate Friends and created my own grief support website.

Along the way, I’ve given myself permission to smile once more and allowed joy to enter my heart again.  I have consciously tried to focus my energies on remembering my daughter’s life rather than only looking at the pain her death has brought.

And yet grief remains a constant part of my life.

Grief is fickle, unpredictable, and indifferent to whatever mood I’m in.

Most days my grief lies dormant under the activities of everyday life. Little triggers continually remind me its there. Triggers like a sad news story on the TV or a girl at the park who reminds me of my daughter. But I can go about my regular routines with no interruptions.

Other times, the triggers are bigger. In those cases, the grief bubbles up and takes over my mood. Tears well up behind my eyes, ready to release at the first opportunity. My patience seems to evaporate and everyday tasks become cumbersome, meaningless, and even difficult. Usually the bursts of grief from larger triggers only last a few hours or at most a few days.

But sometimes it lingers and grows.

Years after her death, I didn’t expect to encounter triggers that make me feel like a return to the debilitating early days of grief.

Feelings of sadness, pain, lethargy, and dis-interest in things I normally enjoy. Going to work becomes a struggle. Even taking care of my kids feels like a burden.

I know these periods require extra attention and care. I navigate through them best I can, asking for support along the way. I just wonder if these episodes will ease over time, or if I should just expect them to become a permanent fixture of my “new normal” life?

If the death of my daughter has taught me anything – and it has taught me A LOT – it’s that we have more inner strength than we can ever imagine. And with time, attention, and support, we can navigate through just about anything life might throw at us.

The Caterpillar

The Caterpillar

It was a morning just like any other. My daughter and I were getting ready for daycare and work. We were doing the regular things we did to get out the door and into the car. As we would leave our shoes outside in the atrium of our house, I opened the door and Margareta waited as I got her Dora the Explorer shoes to put on. After I put them on, she complained that the toes hurt on one of her feet. So I took the shoe off, and stuck my fingers in to see if anything was inside.

When my fingers reached the toe, it was cold and wet and squishy. My first reaction was to get my hand out as quick as possible. As I looked at my fingers when they came out of the shoe, they had greenish goo on them. What the heck was IN there, I thought? I hesitatingly reached back in again to try to get out whatever it was.

Sadly, when I pulled it out, it turned out that a friendly black fuzzy caterpillar had thought that Margareta’s Dora shoe was a nice, warm refuge for the night. Margareta, who loved animals, was very sad that the caterpillar had gotten squished to death. We buried the caterpillar, cleaned her shoe, and then got going once again.

It was probably about a week before Margareta stopped asking me to check her shoes for caterpillars every time we put them on.

Submitted by Maria Kubitz in loving memory of Margareta Kubitz.